Comments on Christian's Journey: Not condoning violence but...

You definitely have kept it together a lot better ...

2009-11-16T09:51:43.478-08:00

You definitely have kept it together a lot better than I could have!! :-)

LOVE the new pictures!! The control is amazing to me so I can only imagine how amazing it must be for you and Manny!! Holy schmoley!! He has improved LEAPS and BOUNDS!!

LOVE the Superman tattoo!! ;-)

Oh- and why is she saying that Christian has to go under general anesthesia to get the current tube out??? I know those things FALL out all the time on their own accidentally.....I know we get a LOT of people through our ER for the same reasons....so why the general anesthesia?? Weird.....I guess I'm lost on that one too!!!

Hope you have a better week!!! XOXO

So glad to see Christian holding up his head! Way ...

2009-11-14T18:57:02.123-08:00

So glad to see Christian holding up his head! Way to go big boy!

Yep it is all about what the Dr is willing to plac...

2009-11-14T09:10:36.018-08:00

Yep it is all about what the Dr is willing to place at the time. Both times T had a tube placed they were the long tube not a Mic-Key and to be fully honest it was a good 8wks and we then ordered a button went back 2wks later to place it and YES they yank it...sigh. Went to GI 2wks latter only to have her make an appt to have him measured and antoher micKey placed (wrong size thanks Dr M). I will also say I hate hate hate the MicKey and I am doing everything in my powers to stay away from having to place another one. T is currently useing a button I can't get anything for anymore (long story), but sadly its the best button so far! I am going to try and get the ped to write a script for AMT mini one. I hope and pray the change goes well and yes I know you'll love the button much better then the long tube. (((HUGS))))

Amy

I think you are my new hero. If put in that situat...

2009-11-14T07:40:39.661-08:00

I think you are my new hero. If put in that situation I probably wouldn't have kept my cool and laid it all out rather rudely. I would looking into another doctor too. It sounds like this one is a total flake and taking your/or the insurances money for a pointless appointment(s).

How frustrating. Honestly, I don't understand...

2009-11-14T06:37:26.488-08:00

How frustrating. Honestly, I don't understand the problem either. We got a mickey from the beginning, but then, we also got a Nissen. Plus, how can they be backordered? Honestly, we have several extras of our button, we always have to have it on hand. How crazy. I know Pam has a lot of experience with buttons and tubes and procedures, so I hope she can help more than me. Also, I am so impressed (and a little jealous) of the pictures of him holding his head up so well! HBOT works! Can't wait for us to start again too!

I'm sorry you are having such problems with th...

2009-11-14T03:39:31.264-08:00

I'm sorry you are having such problems with the surgeon! But on a good note, that's some amazing stuff Christian is doing!!!

I'm so sorry to hear about your doctor appoint...

2009-11-14T03:36:44.054-08:00

I'm so sorry to hear about your doctor appointment. Sounds like you are angry for a good reason! I love, love, love hearing about Christian and his progress, but this doctor has really bummed me out. I'll be praying for you wisdom for this tube/button/surgery. You are a great advocate for Christian and I know you'll make a great decision for him.
(On a side note: your opening line really cracked me up!)